In this podcast published in June 2022 by the Moss Reports, I’ll speak about the journey that led me into my pioneering second career as a patient navigator and the patient advocacy profession that has since been created as a necessity to overcome the failings and complexities of the American healthcare delivery system. I will…
This post was contributed by guest writer Alicia Blair In Carnegie Mellon University’s insights on making decisions in a COVID-19 world, researchers note that the pandemic has posed difficult but interdependent decision-making challenges for professionals and individuals alike. Professionals need to base decisions on relevant health protocols, such as when to keep establishments open. On the…
When I tell people that I am a patient advocate and my job is to help patients and families navigate through our healthcare system, they often respond “I wish I had known you when ….” They tell me stories about when they were overwhelmed, confused, afraid, or unsatisfied by our complicated, expensive, and often inefficient…
Four things you must know when serious illness strikes: Get Smart Fast. Get Organized. Stand Your Ground, Nicely. Always Follow Up. Read this article for detailed helpful hints.
Patient advocacy, or patient navigation, is gaining attention as an emerging profession, both in the media and in the popular lexicon, because it fills so many gaps in the current American health care system. This is especially true today as we continue implementation of the Patient Protection and Affordable Care Act, which is changing the landscape for consumers in how health care is delivered and paid for in this country.
Patient Navigator LLC was interviewed for this excellent reporting by Jeff Blyskal at Consumers’ Checkbook. His article explains clearly the many ways an advocate can help patients and families solve problems and find their way through the healthcare maze. If you’d like to learn more about how an advocate can help you, now or in…
Being diagnosed with a serious illness is a frightening experience. It is important that you research and educate yourself about your disease and learn to communicate with your medical team. An informed patient gets better results.
Any serious diagnosis thrusts patients and their families into an unfamiliar world of doctors, tests and treatment options. Here are my suggestions as you begin the journey through illness.
Patient navigation and patient advocacy are dynamic and growing professions. This article explores the background and current landscape of patient navigation and advocacy.
The bewildering sensation of too much information, yet not enough knowledge to use it, is the reality for many people faced with a serious illness or condition. How do you decide what to do?
In all cases, physicians and patients owe each other certain basic obligations. Here is our list for a better relationship.
Only 12% of Americans have proficient health literacy skills, so the majority of adults may have difficulty completing routine health tasks like understanding discharge instructions or diabetes care. There is a strong, independent association between health literacy and health outcomes.
I received the news last week – two more friends have been diagnosed with breast cancer. I cried. This is the fourth friend in less than two years that has been diagnosed with cancer – a diagnosis that is frightening, life-altering and potentially life-ending. This isn’t fair. Why is this happening? These are all…
We’ve all seen the endless television commercials in which sad and dejected people suddenly start looking happy after taking the particular pill being advertised. However, it’s just not that simple. Depression is a mood disorder that comes in different forms.
People with chronic, unrelenting pain are often told it is “all in their head” and that they should see a psychologist. Palliative care doctors can help.
“Cyberchondriacs” spend hours at the computer screen, typing in symptoms, or fears, wading through the results, both accurate and inaccurate, and convincing themselves they have a certain condition. Often, they will print out reams of documentation and present themselves to their doctors, having already diagnosed their “condition” and determined a course of treatment.
A cancer diagnosis is an emotional earthquake, unleashing fear, anger, sadness, confusion and uncertainty. Depression is a condition that affects many cancer patients at one point or another. In fact, up to 1 in 4 people with cancer do have clinical depression. The good news is that clinical depression can be treated.
The March 4, 2010 New York Times included the following article which discussed the emerging profession of health navigators and patient advocates. Take a look. http://tinyurl.com/healthnavigatorNYT
The Journal of General Internal Medicine recently released ethical guidelines addressing patient, physician, and caregiver relationships. The medical community is increasingly respecting the role of caregivers and offering guidance on how to develop that relationship.
Access to investigational therapies is a highly debated topic in the medical world. Investigational therapy involves drugs that are being scientifically tested but not yet approved by the Food and Drug Administration (FDA). Often these drugs are offered through programs such as “compassionate use programs,” and “expanded access programs” to allow seriously ill patients access…
The words “clinical trials” can conjure up images of desperate medical experiments with little hope of success. In reality, medical advances and breakthroughs can and have resulted from clinical trials. Without them, we wouldn’t have many of the treatments we have today.
I am encouraged – most of the people I know who have had cancer have beaten their disease and become cancer survivors. They struggled through the chemotherapy, the radiation treatment, surgery, physical and emotional upheavals and come out on the other side. It is a time of celebration and elation. But then the reality of…
Cervical cancer, one of the most preventable and treatable cancers, is on the decline. New screening guidelines or not, it’s important to talk with your gynecologist and decide on a course of action that best suits you
Many of you reading this blog have experienced some type of difficult health situation, for yourselves, a friend or family member. It’s also what makes so many of us passionate about helping others through their illness. It’s why Patient Navigator exists. Since it’s the New Year, most people take some type of inventory of their…