In this podcast published in June 2022 by the Moss Reports, I’ll speak about the journey that led me into my pioneering second career as a patient navigator and the patient advocacy profession that has since been created as a necessity to overcome the failings and complexities of the American healthcare delivery system. I will…
When I tell people that I am a patient advocate and my job is to help patients and families navigate through our healthcare system, they often respond “I wish I had known you when ….” They tell me stories about when they were overwhelmed, confused, afraid, or unsatisfied by our complicated, expensive, and often inefficient…
Four things you must know when serious illness strikes: Get Smart Fast. Get Organized. Stand Your Ground, Nicely. Always Follow Up. Read this article for detailed helpful hints.
Patient advocacy, or patient navigation, is gaining attention as an emerging profession, both in the media and in the popular lexicon, because it fills so many gaps in the current American health care system. This is especially true today as we continue implementation of the Patient Protection and Affordable Care Act, which is changing the landscape for consumers in how health care is delivered and paid for in this country.
Patient Navigator LLC was interviewed for this excellent reporting by Jeff Blyskal at Consumers’ Checkbook. His article explains clearly the many ways an advocate can help patients and families solve problems and find their way through the healthcare maze. If you’d like to learn more about how an advocate can help you, now or in…
Being diagnosed with a serious illness is a frightening experience. It is important that you research and educate yourself about your disease and learn to communicate with your medical team. An informed patient gets better results.
Any serious diagnosis thrusts patients and their families into an unfamiliar world of doctors, tests and treatment options. Here are my suggestions as you begin the journey through illness.
Patient navigation and patient advocacy are dynamic and growing professions. This article explores the background and current landscape of patient navigation and advocacy.
The bewildering sensation of too much information, yet not enough knowledge to use it, is the reality for many people faced with a serious illness or condition. How do you decide what to do?
In a new study led by a physician at the Mayo Clinic’s facility in Phoenix and published in the journal Radiology, the investigators determined that the virtual technique was just as effective for patients over age 65 as those aged 50-65.
The Cancer Immunotherapy Trials Network (CITN), announces plans to launch their first clinical trials later this year.
Cancer research continues to yield exciting breakthroughs as scientists learn more about the molecular and biological activity of cancer cells. Autophagy is one example.
Only 12% of Americans have proficient health literacy skills, so the majority of adults may have difficulty completing routine health tasks like understanding discharge instructions or diabetes care. There is a strong, independent association between health literacy and health outcomes.
There are multiple problems with regard to pain management in the United States, including a puritanical history that has contempt for suffering and enormous misunderstanding about pain management and addiction.
I received the news last week – two more friends have been diagnosed with breast cancer. I cried. This is the fourth friend in less than two years that has been diagnosed with cancer – a diagnosis that is frightening, life-altering and potentially life-ending. This isn’t fair. Why is this happening? These are all…
Women, in particular, are sometimes reluctant to seek a second opinion. Learn how and when a second opinion can be life-saving.
Every person has the right to fully participate in decisions regarding his or her own health care. This legal doctrine is called the right to informed consent. As a patient or caregiver, you have the right and responsibility to obtain as much information as you need to be able to commit to a course of treatment or testing process.
People who are multiracial are one of the fastest growing demographic groups in the United States. However, despite donor drives and new efforts to utilize social networking to increase the number of donors, they are also the most under-represented in the marrow registry.
People with chronic, unrelenting pain are often told it is “all in their head” and that they should see a psychologist. Palliative care doctors can help.
When her son’s pediatrician said she had never heard of the National Cancer Institute (www.cancer.gov), this young mom was blown away. Should she worry about entrusting her son’s care to a doctor who has never heard of this world-famous institution? Comments invited.
“Cyberchondriacs” spend hours at the computer screen, typing in symptoms, or fears, wading through the results, both accurate and inaccurate, and convincing themselves they have a certain condition. Often, they will print out reams of documentation and present themselves to their doctors, having already diagnosed their “condition” and determined a course of treatment.
A cancer diagnosis is an emotional earthquake, unleashing fear, anger, sadness, confusion and uncertainty. Depression is a condition that affects many cancer patients at one point or another. In fact, up to 1 in 4 people with cancer do have clinical depression. The good news is that clinical depression can be treated.
The March 4, 2010 New York Times included the following article which discussed the emerging profession of health navigators and patient advocates. Take a look. http://tinyurl.com/healthnavigatorNYT
Scientists have mapped specific genes that turn normal healthy cells into cancerous cells through The Cancer Genome Atlas Project (TCGA). Researchers have now developed a more reliable scientific method to identify these genes. As this research is shared around the world, more accessible and effective cancer treatment options are being discovered. The ultimate goal of the TCGA is to create a catalogue of these “defective” genes, thereby offering increased detection, and ultimately, better prevention and treatment of cancer.