When I tell people that I am a patient advocate and my job is to help patients and families navigate through our healthcare system, they often respond “I wish I had known you when ….” They tell me stories about when they were overwhelmed, confused, afraid, or unsatisfied by our complicated, expensive, and often inefficient…
Patient advocacy, or patient navigation, is gaining attention as an emerging profession, both in the media and in the popular lexicon, because it fills so many gaps in the current American health care system. This is especially true today as we continue implementation of the Patient Protection and Affordable Care Act, which is changing the landscape for consumers in how health care is delivered and paid for in this country.
When choosing a health insurance plan, it’s just as important to make sure the medicines you take regularly are covered as it is to know that your doctor is covered. Selecting the right prescription coverage for you and your family is important to maintaining and restoring your health while managing costs. For those without drug insurance, there are many organizations that can help.
Doctors and other members of the health-care team should regularly assess a patient’s emotional and social needs, and then ensure that the patient is linked to appropriate resources. In reality, though, most do not have the time or staff resources to manage the psycho-social needs of a seriously ill person. Our roadmap series weaves together for you a coherent approach to managing your situation so that you can focus on treatment, healing and recovery.
This Roadmap is divided into four sections: Finding Assistance for Medicine and Treatment; Finding Assistance for Practical Needs; Finding Assistance with Benefits or Entitlements; Websites We Like.
Undergoing treatment for a serious illness is emotionally draining, expensive, uncertain, and it will almost surely turn your life upside down. Chances are that you will face obstacles and need assistance. Whether that help comes in the form of finding medical information, financial assistance, or emotional support, it’s important to know where you can receive trusted information and guidance.
Caregiving for a friend or loved one can be a life-changing experience on many levels. It may mean putting your own life on hold and it may become all-consuming. It might bring joy and quality time with your loved one, or it may bring heartache and despair at the course of events. Studies show that women are the majority of caregivers in this country, often caring for an aging parent and small children at the same time.